I couldn’t help but feel I was invisible, just another body, as I walked the pathways of Nickelodeon Universe at the Mall of America.

The diversity of people roaming the walkways was undeniable – young, old, black, white, body piercings, Jesus jean jackets, Albino white hair, curly black wig hair, robed from head to toe, and scantily dressed.

But as I walked and then stood among the people, it was easy to see why anyone could feel alone, unimportant, just another number trudging the ground of this place called earth.

What is this place?

And why are we here?

What in the world is the point of all this anyway?

I pondered these things as I waited for my daughter to take a spin on the swings.

I positioned myself near a duck game and as odd as it sounds, the ducks called to me in that moment. Laying there lifeless, they reminded me of what I’d observed about people roaming Nickelodeon Universe’s walkways. Aren’t we all just waiting to be chosen, longing to know our lives have purpose beyond mere existence? Don’t we all want to believe we’re special, that we stand out amongst the rest? And why is it that everyday life sometimes causes us to become silent, lifeless, stuck in what feels like a plastic merry-go-round, just like those ducks? Can’t someone just come and rescue us, get us out of this place, help us know we’re more than just another body on the walkway of life?

This theme continued to emerge in different ways as we made our way through the Mall of America. Life CAN feel pointless at times. It’s not uncommon to feel alone, even in a crowd. And it’s ok to wonder if we’ll ever be fully loved and known here on earth. We wait, sometimes in desperation, for reassurance that our life truly does matter.

In all my Christianity, in all my belief that there IS more to this life, I paused and wondered, not for the first time…

What IS the point of all this?

Why God?

Why do you even have us here?

The next morning, I woke bright and early for a desperately needed workout at the gym. Approximately 15 minutes into my workout, I noticed two women hovering over the ledge, staring down intently at the cardio and weight training area. One of the women was significantly distraught, the other was working hard to calm her.

I have radar intuition and knew something was horribly wrong, so I stopped immediately.

As I approached, the calmer woman said to the distraught one, “You need to leave. Get out of here. Everything is going to be ok. Don’t watch this anymore. Go.”

And then I looked down, into that open area where everyone but a few were completely oblivious.

A man was flat down on the ground between two weight training machines. His eyes were closed. He appeared totally unconscious. His chest was heaving notably. I could only assume he’d had a heart attack or stroke and might just as well be dying, right there as I watched.

Two gym members stood inches from the man; I assumed they were present when it happened. The manager of the gym was there, and one personal trainer. I’d arrived so early on in the scene that they were just affixing some equipment to the man’s chest, and were performing CPR. I wondered if anyone had called 911, but determined based on peoples’ behavior that it must have been taken care of.

I began praying silently, to myself, as I watched from above.

Part of me realized it might not be terribly respectful to watch this man in his worst of hours, his life possibly passing by. But there was a bigger part of me that knew – I needed to see this. Maybe the reason my eyes were opened to the incident while most were still oblivious was because there was something I really needed to learn that day.

So I continued to pray, watch with open eyes and an open heart.

Before I knew it, one first responder entered the main floor through the back door wearing layman clothing, nothing official. When he knelt down, I noticed the man’s chest was still heaving notably but irregularly, and he was still unconscious.

Just seconds behind the first responder came the policeman with a big plastic tote in hand. He, too, knelt down next to the man. They began a thorough examination.

Then, a whole host of medical and emergency professionals arrived. And now, there were too many bodies to count, all hovering around this one man.

His life was on the line.

It was then, when I could barely see the man on the ground because of the crowd around him, that I understood more than ever the fragility and sanctity of a single life.

Gym staff gathered large signs and arranged them as screens around the scene to honor and respect this man’s privacy as his body was transferred from the ground to a stretcher.

At that point, I thought it was best if I left, continued my run.

But as I made my way around the corner, pressed play on my iPod, and reluctantly pushed the headphones in my ears, I realized the most fitting song was playing.

I stopped.

And looked down once again, this time from a slightly different angle.

The music played.

I watched newcomers enter the space with great concern. I watched people on treadmills and ellipticals turn around and become aware of all that was happening for the first time. And I could feel and see the gravity of the situation on peoples’ faces as they passed and moved about.

It was a holy moment. Right there in the gym.

As the man’s body was rolled away on the stretcher, tears streamed from my eyes. Kari Jobe’s “What Love is This” played quietly on my iPod. And I couldn’t help but feel God’s presence.

There was something about those moments that made me realize – God’s truly in control. There’s a bigger story that’s unfolding and it’s richer and more complex than we know. We don’t need to know all the answers. We don’t need to understand every bit of why and what and when and how.

But what we DO need to know, what YOU need to know, is this…

You are chosen. God knows. your name. Your life means something. Whether you believe it or not.

In the end, what matters is that you loved and that you were loved.

Your life is at stake. Live it.

Because in the end, when you’re flat on the ground taking what might be your last breaths, you won’t be worrying about how much money you made, what position you held in the company, how big your house was, how fat or thin you were, whether you ate steak or hot dogs for every meal of your life, whether you wore Lululemon workout gear or cheap Target stuff, or whether your kid owned a real American Girl doll or the Walmart knock off. And in those final moments, nobody will give a rip whether you worked overtime, full-time, part-time or not at all.

Nope.

The only thing that will matter when you’re on your death bed is whether you lived and whether you loved. Whatever your situation, live it and love it. That’s all there is.

And know. People care. People love you.

So be loved. Allow yourself to soak it in.

Whatever life circumstance in which you find yourself – whether you feel completely worthless and purposeless and like nobody really knows the real you, or whether you feel full of life and purpose and known by many – just know. you matter.

In the end, they’ll hover around you. It will be a sacred, holy moment. Your life will prove its worth.

So make the most of these days.

Because your life is short.

Do what you love. And love what you live.

Decide to do that.

Because none of us know when we’ll be flat on the ground.

So live for today, as if it’s your last.

And know. You’re important to the God of the universe. He formed your being, He named you special, worthy. He made you with purpose. And he wants you to live abundant. Today.

As I made my way around, to the place where the windows faced the ambulance where the man lay, men and women stood, looking on. “We all get to go like that one way or another at some point,” an older man said to me as we stood there quiet, watching. Nothing but the man’s lifeless foot was visible from the one ambulance door that remained open.

Live. So when you die, others might live differently because of your life.

That one thing you need to know about your life? It matters. So live it.

Amy

The mamas were giving their testimonies.

One by one, they came to the front with their babies, sharing how much of a difference Compassion’s Child Survival Program made in their lives.

One special mama had two babies, not her own. People didn’t understand why she’d taken them in. She couldn’t afford to care for the babies. She was shunned and found herself all alone crying near the street one day. A Compassion Child Survival Program staff happened to pass by and told her about the program, that she’d be able to get support as she raised those babies. She agreed and the children were enrolled in the program. The translator prayed over her, “even though family might not understand you, God does,” he said.

There was another woman with a baby of her own. But she’d also taken in her deceased cousin’s baby. Mid-way through her story, she broke into song. I had no idea what she was saying because there hadn’t been translation yet, but there was something beautiful and tremendously sad about this song long before I knew the words. She sang with courage, she looked up, towards the back of the church as she poured this heart-song out from her soul. There was hope and promise in her words, but in her eyes, I saw the sadness, the depth of pain. She said the Compassion Child Survival Program staff taught her to sing this song when she was feeling tremendous sadness and despair. They encouraged her, “You need to sing this song whenever you feel sad, and you will feel better.” The song, my heart be happy.

And then there was Archille.

She came to the front, holding her son close, tight in her arms. She spoke quietly and tears came to her eyes the second she started talking. She appeared to be hiding a bit behind her son, as if protecting him from her own pain. He was near and dear to her, you could tell. She felt alone, very alone, and I sensed that the moment she started talking, even before I knew why.

Archille shared with us, her son was born with one leg.

She’d been shunned and teased, disowned and laughed at for having a son with one leg. It was and has been immeasurably painful. She didn’t know what to do, didn’t know where to turn. Her tears, the depth of her pain, visible. If there was a way I could’ve reached out to her in that moment, I would’ve.

Archille then proceeded to do one of the most brave things I’ve ever witnessed. She started taking off her son’s pants.

In that moment, we saw his one leg.

It was holy, intimate. We knew the reality she’d been telling was truth.

Archille was advised, Compassion’s Child Survival Program was the best way to care for her boy. Through her involvement in the Child Survival Program, Archille has developed “good friendships and relationships in [the] center.” Home visitors encourage her. And Compassion’s staff have compassion for Archille. They’ve worked with her and she’s “thankful for all they’ve done to help with [her] boy.”

The translator prayed over Archille and her boy, “If God accepts the boy as he is, as we do, we must love him.”

I recognized Archille’s pain the second I saw her hide behind her son, the second I saw the tears in her eyes and they couldn’t be held back anymore. I’d known that pain myself. When tears are so close to the surface that you cry if you speak even one word, you just need someone to listen to you, care for you, act on your behalf.

Perhaps there’s a purpose for our pain, that we might be able to more readily recognize it in others. And help.

We had an opportunity to ask the questions anyone would ask at that point. How does he get around? How would Compassion help this boy with his leg? Mama answered, indicating her boy is able to stand on one leg, gets around by crawling, and is often carried. Compassion has already sent mama Archille’s and baby to Port-Au-Prince where they’ve seen doctors about baby’s leg. He will get a prosthetic when he’s older, but for now he’s too young, so they have to wait.

Yvonne, our trip co-leader and Compassion representative, held the sweet baby boy as we sang songs and prayed with all the mamas and babies. Safe in Yvonne’s arms, Archille’s boy led our way to the Child Development Center.

We spent the next hour or two meeting children and engaging with teachers in the Child Development Center. (I’ll share more about that later!) But Before we knew it, it was time to visit the Child Survival Program building where mamas and babies meet with Compassion staff. It was a lovely space with boards tracking immunizations and child growth, as well as toys and cribs for the babies. This felt like a safe haven, and it was.

I was one of the first to enter the building. The seat next to Yvonne and this beautiful boy with one leg was open. So I took it. There was a part of me that thought the seat would better be taken by someone else, all the others who cared about this boy and wanted to be close, too. But there was me. Perhaps it was God who brought me in among the first. Perhaps it was He who left the seat open.

I had an opportunity to talk with Yvonne about this boy as others entered the space, the hope I had to share his story. We talked about the possibility of getting crutches for this sweet boy, as usually, he’d be walking around this age. Yvonne commented how heavy it must be for mama to carry her boy around all day since he’s getting so big. And I asked, did mama have a sling in which she could carry her son?

Before long, we noticed mama standing right behind us, outside. We invited her in to join us in conversation.

Yvonne told mama Archille that she’d like to work with the project director to try to facilitate getting her boy some crutches so he can start moving around and develop muscle tone in his leg. She couldn’t promise it would be done, but she was going to talk to the director and do her best to help. And Yvonne asked mama, “Do you have a sling you carry him in?” Mama Archille said “no.” I asked mama, “Would you feel more comfortable carrying him on your back or on your front?” “I’d prefer to carry him on my back,” mama said, “but he likes me to carry him in the front.” Yvonne reminded mama once again that she couldn’t promise, but that we’d try to get something to help.

An opportunity came for me to ask mama Archille questions that had nothing to do with sweet baby boy’s leg. “How old is he?” I asked. “Two,” mama said. “When will he be three?” asked Yvonne. Mama replied, “December.”

“Same as my baby” I exclaimed! “Three in December!” Mama Archille and I smiled big smiles, huge, like divine appointment huge. We discovered, our babies’ birthdays? Only NINE days apart!

Everyone was elated. It was a moment out of time for the folks that had gathered. Well, a moment out of time, at least for me. I’d barely even noticed the rest of the group had arrived until I looked up and realized, they were there.

Yvonne, still right next to me, stepped in at just the right moment, with just the right words I would’ve never imagined possible – “You know you can sign up to sponsor him even before he’s officially enrolled in the Child Sponsorship Development Program? I don’t want to put you on the spot, though.” Um, ya. There was no putting me on the spot. It was a no brainer, taking the opportunity to sponsor this little guy. Of course, I’d say yes.

After some brief conversation with the translator, Yvonne, and another Compassion staff, it was determined that I’d need to take with me the baby’s name, baby’s date of birth, mama’s name, and the Compassion Child Survival Program in which which he was enrolled. Then, when I get home, I’ll need to contact Compassion and indicate I’d like to sponsor him when he becomes old enough to enroll in the Child Sponsorship Development Program.

We all decided, this was meant to be. I’ll be the boy’s sponsor when he comes of age.

The translator spoke with Archille and wrote down all the information I’ll need when I contact Compassion back home.

Before mama placed her boy on my lap for a picture, I’d noted, her beautiful baby boy’s name was Charles.

Pain, it’s true and real for all of us. Pain, it pulls us down, makes us want to run and hide or grab ahold tight of anything that’s near.

Hope, it comes in any package. Hope, a promise of better days to come.

Would you like to give hope to a child in desperate need of it? Check out the Compassion website to take a closer look at all the children waiting for a sponsor. These are real. live. children. Not just pictures on your computer screen. They’re real children with real families with real lives, and they could use your help. If you’d be here, you’d see. You’d choose to say yes, I guarantee. We have so much, it’s time to give. And hope’s where it’s at.

Amy

*This is part of a month-long series about my journey to Haiti. Click here to read all the posts in the series.

The battle. It continues. It rages silently.

Daddy, he ended his own life this week. Mama and three kids are left with questions of why and what now? Souls torn apart, changed forever, from just one act.

And mama, she’s not sure what to do. Her young one struggles with autism. He won’t eat and he’s spitting stuff up. There are no answers. She’s rocking this way and that, and she can’t grasp his ways.

Sister fell off the wagon. A strike of fear runs through hearts, for memories of days gone by don’t fade fast. They long for peace, healing, complete restoration, but truth is, all that’s been slow to come.

Brother’s heavy already, and sister’s getting bigger too. Mama brought them to the buffet. They’ve eaten, but hunger for more. Empty eyes on smart phones fill moments of ordinary, and there’s talk of fancy, far off places, hoping something, anything, will fill the holes in their hearts.

In this world you WILL have trouble, we are told. But this trouble, it’s so hard to bear.

For My yoke is easy and my burden is light, He says.

No more tears, no more gnashing promised in this other-world place of glory.

To survive, we believe. For He is extraordinary, His plan far beyond ordinary.

“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”  John 16:33

Amy

In Loving Memory of Charlotte 6/21/12 – 4/27/13

Today, a mama’s 1st birthday wish for her angel baby Charlotte is that we “will continue to follow and share her story.” Charlotte’s mama wants more than anything for us to “Spread the word about Spinal Muscular Atrophy so that other families will be spared the pain of missing their baby on her 1st birthday, and instead will have the gift of watching them blow out their candles.”

Sweet Charlotte was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 just three days before she turned six months old. Shortly after Charlotte’s diagnosis, her page popped up in my Facebook stream. I clicked “like,” not having any idea the tremendous blessing that simple “like” would bring. Through a willing heart, the power of photographs, and her gift for words, Charlotte’s mama taught me how to face the most grueling of life’s battles with faith, hope, and love. Although I’ve never met Charlotte’s family, their Facebook page allowed me to catch glimpses of their beautiful baby daughter’s last days on earth and passing to her heavenly home. Tears streamed down my face as mama and daddy sat with Charlotte in the hospital day after day, as mama danced with Charlotte to “Blessed Be The Name” in the living room, and when two big sisters pulled Charlotte on one of her last wagon rides beneath a bright sunshine.

Baby Charlotte passed away when she was just 10 months old, on April 27, 2013.

It’s hard to understand why God allows such suffering, but perhaps Charlotte’s mama understands best, as she wrote so eloquently in part of her Facebook post from last night, June 20, 2013:

“As the girls and I played with Mr. Potato Head the other day, picking out his various parts and choosing which eyes, nose, and mouth he needed, Grace said to me “I bet this is how God made us…choosing which parts he wanted us to have.” I fought back tears as I told her I agreed; that probably is how God made us. I imagined him picking out Charlotte’s parts…beautiful hazel eyes that were windows to her loving soul with long, curly eyelashes to frame them, a smile like her mommy’s that she would give freely and often, a dimple on her right cheek that would only be noticeable when she was uncharacteristically upset, long legs that her family can now picture her using to run and jump with the angels, and golden hair, almost auburn, that never lays flat and curls backwards at the top of her head…what an angel he made and sent to us; every part of her handpicked by him. Her stinky hands that I now long to smell, her gentle coo that I can close my eyes and hear, and even the SMA he handpicked for her to have. He chose her to carry the burden of this disease and while I many not understand it, I know it was planned. While my human capabilities prevent me from seeing the magnitude of his purpose, I know he has one. I am eased by the belief in a God that doesn’t make mistakes but instead makes miracles. I am forever thankful for my miracle and tomorrow I will celebrate the life of his wonderful, marvelous work, Charlotte.” (written by Charlotte’s mama)

Baby Charlotte, dance free, forever, in your heavenly home. Free of all hindrances, free of all pain, free of all earthly burdens. Dance for your daddy and your mama and your big sisters, too. Dance for the life you lived, dance for the life you live.

This is our birthday celebration, for you, sweet Charlotte. Happy Birthday, baby angel.

You will be beyond blessed by Charlotte’s Facebook page, please follow here. 

Charlotte enjoys SMA-free days in heaven with other angel babies like Benjamin. Read Benjamin’s journey through SMA, shared in a guest post on this blog by his mama Nicole in September 2012 here.

For more information on Spinal Muscular Atrophy, visit the Families of Spinal Muscular Atrophy website here.

The God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast. 1 Peter 5:10

Amy

*The photograph of Charlotte used in this post is from her Facebook page. There, you will find countless beautiful photographs of Charlotte and her family.

The pressure cooker of life wears me down some days, no doubt it wears on others too.

Pressure cooker, defined by Merriam-Webster:

1. an airtight utensil for quick cooking or preserving of foods by means of high-temperature steam under pressure

2. a situation or environment that is fraught with emotional or social pressures

Pressure so great that a prominent pastor’s son ended his life.

Pressure so great that wee ones were and are ripped from wombs.

Pressure so great that innocent spectators and participants were terrorized with pressure cooker bombs at a marathon.

And there’s a baby named Charlotte who has Spinal Muscular Atrophy (SMA) Type I. She’s dying. Charlotte’s mama dances with her in the living room to “Blessed Be Your Name” as she holds dear to precious moments that remain.

The grief feels unbearable for Aden’s mama. Her sweet boy passed just weeks ago to cancer, and she and the rest of the family are on a cruise to help relieve the pain, but tears stream in quiet on the ship deck. The pain from loss overwhelms Caribbean beauty, and she sits paralyzed, just her and God in this place of sorrow.

And down your street, men and women fight. Husbands and wives sleeping in different rooms, and they can’t figure out how to fix this. They don’t remember the love, the promise that brought them to the alter years ago. The pressure is building and it needs to be released. Somehow. Now.

On top of all this comes the rain, the sleet, and the snow. We’re hearty here in Minnesota, but when it’s April 18th and it’s been cloudy for weeks and the temperature hasn’t risen above 40-something except for maybe a day, everyone feels the pressure. So when the 1-4 inch snow predicted turned to a major snowstorm in the middle of my work day yesterday, I just about lost it. It had been raining and sleeting all morning as I made my way from house to house for therapy. The sleet turned to snow before my 12:30 visit, so when I returned to my car an hour later, it was covered with a thick layer of snow. And the scraper was nowhere to be found, so my wipers sufficed. Cold snow fell in on the driver’s side arm rest and onto my pants as I pushed the automatic window button, the bare minimum necessary to remove snow from the side windows just enough so I could see. As if denying the snow’s presence was going to make it go away.

The roads were snow packed, the only thing filling baseball fields was snow, and I felt like I was trapped in a snow globe with no hope of ever getting out.

Even the snow packed trees were hard to see as beautiful because I kept thinking it’s April 18th, and we’re supposed to be wearing flip flops and shorts and playing outside on the playground today. For when life’s served you too much pressure, and there’s never an opening for release, finding beauty, finding something to be grateful for is like finding a needle in a haystack.

And when I got home, the task of clearing the driveway from inches of snow loomed.

The school had called notifying us of a school delay and my husband stayed late to avoid the traffic, so after the girls went to bed, my son volunteered to help me shovel.

I shoveled one strip all the way down the driveway, and to be honest, I wasn’t up to the task. But my son, he was pressing on, and I didn’t have to beg or plea, so I thought it best for me to be an example.

After a while, I told him “I can’t do this anymore. It’s too long, it’s too cold.” “Who cares,” he said, and kept shoveling. After that, I was determined to finish that driveway, to be an example whether I liked it or not.

The cold pressed in even greater. The snow was heavy, and it felt like each shovel-full was 20 pounds. And in my grumbling, my complaining to myself, I thought of Ann Voskamp’s One Thousand Gifts, how her book and her blog and through nearly three years of reading, her message of gratitude, of eucharisteo, has been pressing in on me. So I gave thanks for my son who was still shoveling and not complaining one bit, for a flurry of snowflakes illuminated by the street light.

But in all honesty, those moments of gratitude turned to anger because I was still shoveling heavy loads of snow, and there was still half of the driveway to shovel, and it was still. April 18th. In the allowing myself to experience that anger, I thought of messages on anger I heard earlier that day on faith radio, how when we’re angry our “personhood,” our sense of security is threatened. And another message I heard last week about turning our anger not towards others but FOR others, so justice can be served for all the right reasons.

And I realized, I am angry. My sense of security has been threatened, my “personhood” has been threatened. So I started throwing snow in the name of justice. I threw snow for the tiny souls that never got to breathe a breath. I threw snow for little Charlotte who’s going to pass to heaven while still an infant, for Charlotte’s mom who will grieve the death of her precious daughter before she knows it. I threw snow for the little boy whose beautiful life was cut short because evil prevailed through a bomb. And I asked God why? WHY?

In those moments of anger and throwing snow for justice and asking God why, these verses came to mind…

I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world. John 16:33

But we have this treasure in jars of clay to show that this all-surpassing power is from Godand not from us. We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed. We always carry around in our body the death of Jesus, so that the life of Jesus may also be revealed in our body. For we who are alive are always being given over to death for Jesus’ sake, so that his life may also be revealed in our mortal body.  2 Corinthians 4:7-11

Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.  Matthew 11:28-30

So I stopped and I stood still near the end of the driveway. The wind picked up, the snow blew cold on my cheeks, and I heard His still small voice “Feel my presence, even in the cold. Even in the cold.”

Amy